Our guest in this episode is Dr. Órla Gilheaney. Not only is she a clinician, lecturer and researcher working in the field of invisible conditions such as fibromyalgia, but she is also a person living with fibromyalgia herself.  Fibromyalgia is a chronic disorder that can cause various symptoms such as widespread pain, fatigue, muscle stiffness, …

EP 16: Fibromyalgia and dysphagia with Órla Gilheaney Read More »

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We started this podcast one year ago and we could not be any happier with how it went so far. Thank you so much for listening and joining us! We are really excited about what’s going to come in the new year.Happy holidays and all the best for 2023! Julia & Jule https://media.blubrry.com/1474691/podcast.dysphagiamatters.org/files/wrapup22.mp3Podcast: Play in …

One year of dysphagia matters Read More »

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Bodhi is now 3 years old. When he was about 6 weeks, his parents first noticed something was different. They now know that Bodhi has severe dysphagia but still don’t know the underlying cause. Bodhi’s mum Kelly talks about the different assessments Bodhi went through, the diagnoses he was given, the lack of awareness of …

EP 15: Searching for a cause of Bodhi’s paediatric dysphagia with Kelly Read More »

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How do we know what outcomes to measure and when to measure them when designing clinical trials? And how can we make studies more comparable, so that researchers measure the same outcomes with the same assessment at the same time points? One solution is the development and application of Core Outcome Sets (COS). Dr. Sarah …

EP 14: New standards in dysphagia research: Core outcome sets with Sarah Gorst and Nicola Harman Read More »

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Coughing and swallowing are two important functions, both providing airway protection and therefore being essential for survival. However, as students and clinicians we usually learn a lot more about swallowing than about coughing. And often, evaluating the cough function in the dysphagia assessment goes down with simply asking the patient to cough and subjectively assessing …

EP 13: Cough reflex testing with Emma Wallace Read More »

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