EP 15: Searching for a cause of Bodhi’s paediatric dysphagia with Kelly

Bodhi is now 3 years old. When he was about 6 weeks, his parents first noticed something was different. They now know that Bodhi has severe dysphagia but still don’t know the underlying cause. Bodhi’s mum Kelly talks about the different assessments Bodhi went through, the diagnoses he was given, the lack of awareness of paediatric dysphagia and the impact on a family’s life when having a child with swallowing difficulties. She also gives advice on what clinicians can do to support parents in this challenging situation.

At the end of the episode, Kelly gives a short update on how Bodhi is doing approx. 4 months after the recording of our conversation. A lot has happened in the meantime, so keep on listening!

Go follow Kelly @swallow.eat.breathe on instagram and stay informed about their journey. If anyone has any advice for Bodhi and Kelly please reach out to us. We wish them all the best and hope that they will find the cause for Bodhi’s dysphagia soon!

If you are new to IDDSI levels you can find further information on www.iddsi.org.

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