In this episode we speak with Kristin, whose daughter Mackenzie had severe swallowing difficulties. Kristin talks openly about their journey from the first cough and choke until a diagnosis and treatment. She also shares the struggles of not getting information but how the internet could help her. She also gives some pretty good advice to all clinicians working with kids with feeding and swallowing difficulties.
SPOILER ALERT: Do not look at the resources linked below if you do not want to find out the underlying cause before listening to the episode!
- Facebook groups: NFOSD Pediatric Support Group: Babies with Swallowing/Feeding Disorders; Pediatric dysphagia & aspiration
- Coppess et al. (2019). Standardizing Laryngeal Cleft Evaluations: Reliability of the Interarytenoid Assessment Protocol. https://doi.org/10.1177/0194599818806283
- Johnston et al. (2014). Laryngeal cleft: Evaluation and management. https://doi.org/10.1016/j.ijporl.2014.03.015
- Timashpolsky et al. (2021). Management of Type 1 Laryngeal Clefts: A Systematic Review and Meta-analysis. https://doi.org/10.1177/0194599820947742